THIS! Exactly this. If I had believed the first few doctors that told me my illness was all in my head, I’d be dead. I’m now clinically DXed with Ehlers-Danlos Syndrome (Considered rare, but actually rarely diagnosed). Do you know how often doctors throw around the psycho-somatic disease diagnosis? If they personally…

It’s not related to hemophila. EDS is a connective tissue disease that effects the collagen. It makes the collagen super weak and since you body is pretty much made of collagen you can imagine the shenanigans that arise. Source: I have EDS with vascular involvement.

I was thinking this same thing. I've had people accuse me of being anorexic recently. It feels really awful, especially when you are really hungry. I have gastroparesis and am going to need a tube in my stomach so I can eat again and not throw up my food anymore. There are 100s of other reasons why someone can be…

Didn't use the wikis :(