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Would have to agree. I also have Marfans and this def looks like a fairly easy pose to rock due to the hyper-extension / double-jointed reflections of the mutation.

Gotta stay positive; still waiting on my invite to Xavier's! Appreciate your insight and sharing your personal experiences

Of course! If anyone has any questions about the condition, more than happy to provide my perspective.

Haha no worries man, didn't think you were being negative at all. My response was more in the vein of saying that I always looked at my condition as a positive (the added height allows girls I date to rock heels and I was always a lock to play volleyball and other sports). I hear you about the general public and…

Plus with the added height, I'm usually the first one picked to play volleyball!

As an individual with Marfan's I can say it's not all doom and gloom. The condition varies in severity from person to person and with regular visit to the cardiologist, we mostly live full and healthy lives.

Hey there, as a person with Marfan's I can say that it's not all bad. It can range in severity and for most people (like me) can live long healthy lives. Sure we don't always look like everyone else, but it's no different than most medical conditions.