The PDF linked above confirms that. The parents are certain there was no brain damage during the seizures in December, but last I checked neither of them were neurologists. It’s a terrible spot to be in.

That’s what makes me so sad and angry in this whole case. He was not withheld treatment that would save his life, he was not withheld treatment that would let him grow up and play soccer and get married and have babies of his own. He was withheld treatment that would have “let” him continue to live in a vegetative…

This article is a bit misleading as it states that “Dr. Michia Hirano, had given a conservative estimate of it having a 10% chance of success.” This implies that there was in fact a better than 10% chance of ‘success’ and, more importantly, doesn’t explain what success would have meant in this context. Most will read…

Don’t forget that after the child died in the US, parents would be stuck with hundreds of thousands in medical expenses.

Plus, he wasn’t even in the office on 9/11.

don’t forget that he hid all the WMDs in Iraq so NOBODY could find them.

I can’t believe found Obama time to make Americans suffer under his care while simultaneous planning 9/11. What a truly great President we had.

Also, did anyone else see the clip where Trump claimed people have been “suffering” under ObamaCare for the last SEVENTEEN years? This schmuck can’t even read from a prepared statement correctly.

Trump doesn’t give a shit about what nuns think. In his mind they’re all just broads who were too ugly to find a husband.

UK Update:

Seconded to you and the OP. Healthy kids are dying in the US but pro-lifers don’t care. The cognitive dissonance is astounding.

This. The right-wing Americans were fucking hypocrites about this. Charlie would have died LONG AGO had he been born in America. And no one would have cared. Anyone can check GoFundMe right now - it’s filled with American children seeking money for hospital costs.

I feel bad for the parents, too. It’s clear they’re heartbroken and they are lashing out at the hospital because it’s too hard to come to terms with the reality that life is just cruel sometimes.

Sad all around, but the death threats against the doctors and nurses at the hospital just blew me away. And the way the rightwing American pundits framed this tragedy made me ill. Anytime there was article about the this case, Americans would ride into the comments going on about the evils of socialized medicine, and…

I have a 1 month old, and I can’t even imagine how horrible this must be for the parents, but I also truly believe that as terrible as it would be, I wouldn’t want to put my baby through that extra pain for a treatment that only has a 10% chance of working. Sometimes being a pragmatist is actually merciful

You’re right. GOSH is a world class paediatric centre, they were well aware of nucleoside therapy and explored it as an option early on but it became clear that it would not help in this case. You can read their position statement here:

The couple said they had wanted to give Charlie a real chance of getting better and that a “whole lot of time has been wasted.”

Unfortunately, it sounds like they’re blaming GOSH for not being able to start the experimental treatment earlier when, by most accounts the treatment wouldn’t have been able to help no matter when he received it.

I’m a parent and fully understand the emotional want to do what they can. However the asshole pragmatic in me knows this treatment would at best be tilting at windmills and would do nothing to help Charlie. Best to let the lad pass on in his own time surrounded by family.

This is very sad. It seems to me like it has been too late to do anything for Charlie for a long time, and it seems his parents were finally able to accept that. I hope they get the help and support they need to get through this terrible time.