fdgarrett
Fdgarrett
fdgarrett

Nobody inappropriately “mommy’s” like Nancy Grace! She should be fined every single time!

Don’t want to judge women who felt raped during birth BUT have they ever been raped? Very different.

Sorry. ARC is an organization for people with intellectual disabilities. They are in almost every city to offer help.

And how many do you think will be able to avoid getting pregnant? Not only will more sick babies be born, now the message is the parents are at fault for not keeping their legs closed. Most women have little choice as that is their duty & dad will likely somehow blame mom and bail.

This will sound gross, but if you see any organization for this, avoid donating. Very few dollars reach actual children or families. The money goes to administrative costs...its business! I would locate an Arc in your area & even then question where that money will go. GoFundMe pages go straight to struggling families

This is me after most doctor and therapist appointments.

I have offered support to women around the world that just realized what microcephaly will mean to their child and family. A common result is anger. They aren't ready for reality yet. They truly believe their child will be the one saved and will be just fine. Seeing my son is their worst fear. How could an 8 year old

To add to that resentment, it's illegal for me to take perfectly good medical equipment and the like for donation because it could hurt disabled kids. Sounds crazy? It is. A floor sitter chair requires no adjustments, and it either fits the kid or doesn't. The answer? The kid can lay on the floor or four mad a way to

Also, all those diet changes are grrrreeeaaattt....except most with microcephaly can’t eat. I haven’t met many without gtube filled with a special formula of high calorie complete nutrition. Most cannot swallow without aspirating which makes that food go into their lungs causing serious infection and no nutrition.

It’s a small community in the US of families with microcephalic children. Very small and very fragmented. I keep up with many of them but it’s a lot less than when I started because even with all the medical care they receive so many have died young. Lots of suffering and lots of death. I get the resentment. I feel

I don't want to star this because 69 seems the perfect number of stars but do tell alllllll!

My daughter’s nurse called me “boss lady” today. I mentioned that I hate when anyone other than my kids called me mommy & she remembered.

Yaassss! Every single time a woman lives/loves her life outside the veil of perfection (not a real thing and we all know it) she gives more freedom to live for all of us and for our daughters.

Microcephaly doesn’t wipe out all the happy moments.

I’m done having babies with this last one (took 8 years to get brave enough to try again and had one 2/15 & one 2/16) and would love to find a way to reach out to these women to offer clothes and supplies and help connect them to the things they don’t even know they’ll need. As much as I would love to go there myself,

Agreed. Don't judge another for a difficult life choice unless you are prepared to offer a solution of your own. And suggesting these women deliver these lifelong sick babies without any hint of how they will care for them and/or work to pay for basic survival needs is pointless, useless and cruel.

Does anyone know of any organizations banding together to send all the things we have here that these women can't afford there? I have positional support equipment, outgrown wheelchairs, other medical supplies I could donate but haven't seen anyone doing this yet.

Once I experienced exactly what could wrong, the rarest of the rare & hardest of hard, I have never been able to talk myself down from the worry. I was so thankful my last baby was born this month because I worried about this Zika thing every day(I live on the gulf coast Houston/Galveston) & nobody could help me

Suburban white lady here...also mother to a child with microcephaly. Of course my son is a blessing! But it has been extremely difficult all 8 years of his life. We have a full time nurse, respite care provider, home physical therapy, occupational therapy, speech therapy, visual impairment teacher and visiting

This. Exactly what you said.