Another one here. And I’ve only just started commenting. I totally understand and agree with the self medicating theory. I’ve been fortunate to not have one to resort to that, but I did go years without consistent and effective pain relief. Had that continued, I don’t know what I’d have done. Hope you’re doing well.

Fellow EDS with POTS here. Sorry to here you have it. It sucks. My problems have become much worse recently, so your combination of meds sounds very intriguing. Do you have problems with them at all? My doctor will only prescribe Ambien and Ativan, both at stupidly low doses. Something will have to change real fast,…

Are you familiar with Judah Smith? Would check out his podcasts if you get the chance-very in line with what you’ve said.