Sorry late reply. I didn’t see the notification. I am also recently diagnosed in my 30s and about to start trying to have kids so that’s good to know, if alarming. Yeah, aging is the thing they warn you about for sure...

Wait, why is she insufferable? At least in this situation...

Kinda off topic but I just got my formal EDS diagnosis and your references to it here made me feel a little less alone. Yay joints that don’t want to join and skin that doesn’t want to stay together!